Do not give MS, this demon we have come to know as multiple sclerosis or anything else the power to kill the gifts you've been blessed with or have developed to add value to you life. I am a jewelry designer who is still determined to give MS a fight to the end. One of the gifts I nurtured honed and developed was the ability to sew and design clothing. MS has taken my love for sewing and creating beauty from a piece of fabric. I am no longer able to use my legs That journey began for me when I was about 11 or 12 years old when the initial symptoms began.. I was diagnosed with MS 24 years ago, and have lived with it's effects since I was about thirteen. My ability to walk and be independent was taken by MS nearly 10 years ago. I will celebrate my 60th birthday later this year. I will always win against this disease because I am determined to protect and nurture

These are a sampling of the MS Collection I have posted on my website at

http://www.icypearljewelry.com/

I am raising the funds needed for stem cell transplantation and a ramp for the front of my home until we can move to more suitable living accommodations.

#CureMS #MultipleSclerosis
#NeverGiveUp!
#ApproveStemCellsfForMS

 

GOOD DAY EVERYONE!

I just had to take a moment to say that I AM GRATEFUL that this today I got up DETERMINED that COMPLETION of something I needed to start or finish would be scratched off a long list of to do's. Sharing this today was on my heart because there is someone that has something they have been needing or wanting to do has been too and has been put off for some reason or another.

My reasons for delays and putting offs are mainly due to this disease. #MultipleSclerosis is a thief of many things physical and at times mental/emotional.  I am grateful that my put offs are seldom the latter. Those who are effected by this illness know all too well how #MS has stolen so many desires and intentions to do and complete their tasks. Today, at least, I will finish a couple. I encourage someone to do the same, especially if your obstacle to do is not as off putting as an illness for which there is no cure. Please include include in your daily prayers that a cure for MS is soon realized and revealed.

Have a blessed, productive and fulfilled day. If the sick can be that witness.....what then can anyone else push for?

 #KEEPONPUSHING #MULTIPLESCLEROSISSUCKS #CUREMS

STILL FIGHTING BACK AGANST MULTIPLE SCLEROSIS

 

Here I am, still pushing to keep Multiple Sclerosis from making any other decisions over my life or my will to keep fighting back. You kept coming with your random and not so random symptoms, from head to toe, from deep within and with outward manifestations Thankfully, I will continue to fight back as I  push forward toward my passions and purposes that I was put here to do. Even from this seated position, MS will not win. Twenty two years since being diagnosed, and it has diminished the use of my legs to almost useless. The key word for me there is "almost" though. I still have feelings in my legs.....but no strength and I've lost a lost of muscle. I'm still fighting back. I eat a mostly plant based diet and have not eaten pork or beef for about 30 years. We use a motorized foot bike, and I do arm and hand strengthening exercises every day and I take quite a few vitamins and other supplements.

Although I've been confined to my home and a have used a wheelchair for nearly 8 years, I am still fighting for my cure and quality of life that was viciously taken away over time by this illness. My will is STRONG; and I am determined that I WILL WALK AGAIN and believe I WILL BE CURED!

Thank you for reading this part of my life story. Please pray for me.

http://www.gofundme.com/ANewDayForIce

MIRACLE STEM CELL TRANSPLANTATION!

Today, I feel more hopeful than usual about my future living with Multiple Sclerosis. I also believe in miracles. Whatever way that miracle comes, whether in how I eat, supplements I take, or the touch from the Masters hand, it must come. After living with this illness for 22 years since being diagnosed, and the more than 24 years of not having a name for the symptoms, I deserve relief. It is unconscionable that people in my situation who have not done well with Disease Modifying Drugs, must continue on living in a space between remaining hopeful and at times on the brink of despair. I took four of the DMD's and the effects of one of them, the first one I took effected my thyroid.  Now I have had to take medicine for the last 20 years to regulate its function. That will most likely be for the rest of my life.

I pray for relief from the symptoms of MS, and my need to be independent again. In my research over so many years, there was only one other therapy that I felt was useful to fight for, get and possibly be the relief and maybe cure I needed. There was a treatment that gave limited temporary relief. In the back of my mind, in keeping a vision of where I felt I was going and continuing on a journey to make this life better, I'm willing to try almost anything. This life journey has been nothing but a crash course with many struggles to overcome.  To continue striving to keep in a balance is one thing. Remaining at peace is made so complex to stay somewhat normal. Being chronically sick is not normal. Sometime ago, there was an article that was quite alarming, but the conclusion is believable. It stated that by 2050, almost everyone that exists on earth will be living with some type of illness.

The human body can only take but so much with bombardments of chemicals, toxins, pollutants, disease and everything we come in contact with daily. From the time we awaken each day, everything we put in and on our bodies begins our toxic intake. Water has fluoride and other chemicals we put on our largest organ, our skin. Then, we brush our teeth with fluoride toothpaste. Then we eat food with who knows what's in it or on it. Contact with toxicity continues during the day. Just think about it!

Stem cell transplantation is a concept whose time has come. America has the best healthcare system in the world. In dealing with Multiple Sclerosis, the costs associated with just trying to stay "well" with a disease that has no cure and so hard to manage is astronomical. Costs can be up to $69,000 and more per year. If restrictions were removed for stem cell transplants, Americans with MS wouldn't have to go to foreign countries to have the procedure done. It just doesn't that make sense. My prayers and focus  remain in place as the anchor to keeping the purpose of my journey for a better outcome in sight. Still, this is the closest to a "cure" I'll probably see in my lifetime. Although being 57 is somewhat old to some, there could still be about 15 years or more I can still enjoy somewhat symptom free and continue on a more progressive course absent of Multiple Sclerosis.

http://www.telegraph.co.uk/news/science/science-news/11442985/Miracle-stem-cell-therapy-reverses-multiple-sclerosis.html





Until next time, may GOD bless you. TBC - To Be Continued...........Soon!

You know, when you have been doing so much, the statistics may even actually show it. Like doing something so much for a period of time, a short period period of time can even be worse.
Since 2008, someone has been on a particular social medium, and they have posted, almost 94,000 entries, have a little more than 2,000 people in either direction, almost 400 pictures/videos and a few other categories. Dear LORD, if all this has been going on, where have I been? I'd love to have some time that didn't matter to some. Maybe you're already wealthy enough to not feel the need to do something else to elevate yourself, or to elevate mankind. I sure don't know!

I do understand. I'm trying to figure out a better life than this disease Multiple Sclerosis has stolen for the last 21 years. That's in addition to the over 20 years before of not knowing. I am still trying to figure out some things also. How to get a wheelchair lift or a ramp for the front of my home and a handicapped mobility vehicle so I can drive again. More than the aids for the front of the house, the ideal situation is to move to another home that is handicapped accessible inside and out. At 56, with a disease like MS, it's more important now than ever to "KEEP ON PUSHIN". Dear LORD, has all this has really been going on since I lost my ability to walk, along with the financial collapse of that time exploded? I'd love to have some time that didn't matter to some. Maybe you're already wealthy enough to not feel the need to do something else to elevate yourself to elevate mankind. I sure don't know!

This said, even with ones wealth, if that is the case, that's a lot of down time.....or is it up time? It's a lot of time one can't get back, and that's for sure. If I ever had so many leisurely hours it took to amass such a portfolio, I'D BE RICH! and would have been long before computers. SIX YEARS OF BLISS, would be all I needed to be rid of the stagnation of this disease. Even if the wheelchair still existed, (preferably not), and a few other correctable things were removed I'd show you the value of a life not obsessed with too much of some things other people value....how not to waste so much time.....HEALTH and TIME! TIME and HEALTH! It all equals wealth that I and no many others appreciate the value of....even before a diagnosis.

TBC - TO BE CONTINUED

Maybe soon, but have to get back to the aforementioned things I just need to capture and recapture......and more!

GOD BLESS!